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Folic Acid Information: Center for Disease Control

Spina Bifida Association of America

FolicAcid.Net - provides Folic Acid: A Guide for Health Professionals,  a free, Web-based training module with information on the benefits of folic acid and offers strategies for counseling individuals on folic acid intake.

Folic Acid Councils: Washington State Council

National Council on Folic Acid

Cystic Fibrosis Links CF Newsgroup for Docs

The Cystic Fibrosis Foundation

Your Genes, Your Health website

www.CysticFibrosis.com

The Cystic Fibrosis Center at Stanford

Preconception/Prenatal & Pregnancy  Health Links Teratogens - resource website from the University of Kansas Medical Center

TERIS - Clinical Teratology Web from the University of Washington

WA State Midwives Site has extensive links and resources.

National Women's Health Information Center site for Healthy Pregnancy

Healthy Mothers, Healthy Babies Coalition of Washington State Link to free materials that advertise HMHB's community resources.  Also a voucher for practitioners, which when redeemed by a patient provides a free health informational "Baby Book" with health tips from preconception through the baby's first year; available in multiple languages.

Fish Facts from the Washington Dept. of Health, to present important information about consuming fish and preconception health.

DID YOU ASK? website provides useful information to health care professionals regarding perinatal substance use and how to screen during pregnancy; includes a Prenatal History Questionaire, referral sources, and links.

March of Dimes Physician/Nurse Continuing Education site, including a free downloadable Preconception Curriculum in PowerPoint format, and the Genetics and Your Practice curriculum in .pdf format.

Genetic Educational Materials The Genetic Educational Materials  (GEM) Databank - a searchable listing of public health genetics policy documents and clinical genetic educational materials.

University of Kansas' Genetics Education Center - a popular and comprehensive web site on genetic counseling and a wide range of genetic issues with extensive links. 

National Newborn Screening and Genetics Resource Center (NNSGRC) - provides information and resources in the area of newborn screening and genetics.

Washington State Department of Health's Newborn Screening Program - offers education for parents and health care providers, printable versions of educational materials, and disorder-specific fact sheets and resource lists for providers.

The Genetics Home Reference guide, a good general public information service of the US National Library of Medicine.

See also following entries on foreign languages.

Pregnancy-related Health Information in Spanish The National Alliance for Hispanic Health, supports the The National Hispanic Prenatal Helpline (1-800-504-7081) and Su Familia: The National Hispanic Family Health Helpline
1-866-Su-Familia (1-866-783-2645)

The National Human Genome Research Institute - online Spanish Talking Glossary of Genetics

Maternal and Child Health Library's Spanish Language Health Resource Knowledge Path - includes links to Spanish web sites, electronic publications, hotlines, journal articles, print publications, databases, and an electronic discussion group.

SISTEMA DE INFORMACIÓN SOBRE ENFERMEDADES RARAS EN ESPAÑOL (SIERE) - a Spanish language web site with general information and support associations contact info on an extensive number of genetic disorders, many individual conditions pages also linked to English information on the National Center for Biotechnology Information (NIH) web site.

National Women's Health Information Center Spanish site for Healthy Pregnancy

Agency for Toxic Substances and Disease Registry - site in Spanish with links to other government Spanish-language sites

General health information, including smoking and nutrition, in Spanish through Healthfinder.gov

Link to the California Family Health Council order page for Spanish materials on physical and emotional issues in pregnancy, and non-drug pregnancy symptom relief.

Pregnancy-related Health Information in Other Languages

Materials for order on Thalassemias Among Asians and a free interactive educational CD-ROM designed to educate health care providers, particularly those serving Asian Americans and Pacific Islanders, about clinical considerations in the quickly evolving field of genetics (Genetics and the Primary Care Provider With a Special Focus on Asian Americans and Pacific Islanders)

Down Syndrome Information in Chinese: The Hong Kong Down Syndrome Association has a website. For descriptions about the genetic causes of Down Syndrome in Chinese click here.
Cultural/Ethnic Competency and Services

Ethnic Medicine Information from Harborview Medical Center (Ethnomed)

The 24 Languages Project - Utah

The Cross Cultural Health Care Program

Interpreter Services in Washington State

University of Washington's Culture Clues

Culture, Health, and Literacy:  A guide to Health Education Materials for Adults with Limited English Literacy Skills

Telephone Helplines Tobacco Quit Line   877-270-STOP or in Spanish, 877-2NO-FUME

Alcohol and Drug Hotline  800-562-1240

Domestic Violence Hotline  800-562-6025

ASK (Answers for Special Kids) Hotline, from Healthy Mothers, Healthy Babies  800-322-2588

The National Hispanic Prenatal Helpline 800-504-7081

Supporting Professional Organizations and Associations Washington State Obstetrical Association

Midwives of Washington (ACNM Chapter)

Seattle/King County Public Health

Office of Maternal and Infant Health, Washington State Department of Health

CDC's National Center on Birth Defects and Developmental Disorders

Washington State Folic Acid Council

Washington State Public Health Association

King County Nurses Association

Washington State Medical Association

Washington Academy of Family Physicians

ARNP's United of Washington State

March of Dimes - WA State Chapter

University of Kansas' Genetics Education Center

The Maternal and Child Health Neighborhood

National Council on Folic Acid

Office of Newborn Screening, Washington State Department of Health

National Newborn Screening and Genetics Resource Center (NNSGRC)

 

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Last Update: August 2003 RLM




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