| Folic
Acid Information: |
Center
for Disease Control
Spina
Bifida Association of America
FolicAcid.Net
- provides Folic Acid: A Guide for Health Professionals, a
free, Web-based training module with information on the benefits
of folic acid and offers strategies for counseling individuals on
folic acid intake.
|
| Folic
Acid Councils: |
Washington
State Council
National
Council on Folic Acid
|
| Cystic
Fibrosis Links |
CF
Newsgroup for Docs
The
Cystic Fibrosis Foundation
Your
Genes, Your Health website
www.CysticFibrosis.com
The
Cystic Fibrosis Center at Stanford |
| Preconception/Prenatal
& Pregnancy Health
Links
|
Teratogens
- resource website from the University of Kansas Medical Center
TERIS
- Clinical Teratology Web from the University of Washington
WA
State Midwives Site has extensive links and resources.
National
Women's Health Information Center site for Healthy Pregnancy
Healthy
Mothers, Healthy Babies Coalition of Washington State Link
to free materials that advertise HMHB's community resources.
Also a voucher for practitioners, which when redeemed by a patient
provides a free health informational "Baby Book" with
health tips from preconception through the baby's first year;
available in multiple languages.
Fish
Facts from the Washington Dept. of Health, to present
important information about consuming fish and preconception
health.
DID
YOU ASK? website provides useful information to health care
professionals regarding perinatal substance use and how to screen
during pregnancy; includes a Prenatal
History Questionaire, referral sources, and links.
March
of Dimes Physician/Nurse Continuing Education site, including
a free downloadable Preconception
Curriculum in PowerPoint format, and the Genetics
and Your Practice curriculum in .pdf format.
|
| Genetic
Educational Materials |
The
Genetic Educational Materials (GEM) Databank - a
searchable listing of public health genetics policy documents and
clinical genetic educational materials.
University
of Kansas' Genetics Education Center - a popular and
comprehensive web site on genetic counseling and a wide range of
genetic issues with extensive links.
National
Newborn Screening and Genetics Resource Center (NNSGRC)
- provides information and resources
in the area of newborn screening and genetics.
Washington
State Department of Health's Newborn Screening Program -
offers education for parents and health care providers, printable
versions of educational materials, and disorder-specific fact
sheets and resource lists for providers.
The Genetics
Home Reference guide, a good general public information
service of the US National Library of Medicine.
See also following entries on
foreign languages.
|
| Pregnancy-related
Health Information in Spanish |
The
National Alliance for Hispanic Health, supports the The
National Hispanic Prenatal Helpline (1-800-504-7081) and Su
Familia: The National Hispanic Family Health Helpline
1-866-Su-Familia (1-866-783-2645)
The
National
Human Genome Research Institute - online
Spanish Talking Glossary of Genetics
Maternal
and Child Health Library's Spanish Language Health Resource
Knowledge Path - includes links to Spanish web sites,
electronic publications, hotlines, journal articles, print
publications, databases, and an electronic discussion group.
SISTEMA DE INFORMACIÓN SOBRE ENFERMEDADES RARAS EN ESPAÑOL
(SIERE) - a Spanish language web site with general information
and support associations contact info on an extensive number of
genetic disorders, many individual conditions pages also linked to
English information on the National
Center for Biotechnology Information (NIH) web site.
National
Women's Health Information Center Spanish site for Healthy
Pregnancy
Agency
for Toxic Substances and Disease Registry - site in Spanish
with links to other government Spanish-language sites
General health information,
including smoking and nutrition, in Spanish through Healthfinder.gov
Link to the California
Family Health Council order page for Spanish materials on
physical and emotional issues in pregnancy, and non-drug pregnancy
symptom relief.
|
| Pregnancy-related
Health Information in Other Languages |
Materials for order on Thalassemias
Among Asians and a free interactive educational
CD-ROM designed to educate health care providers, particularly
those serving Asian Americans and Pacific Islanders, about
clinical considerations in the quickly evolving field of genetics
(Genetics
and the Primary Care Provider With a Special Focus on Asian
Americans and Pacific Islanders)
|
| Down
Syndrome Information in Chinese: |
The
Hong Kong Down Syndrome Association has a website. For
descriptions about the genetic causes of Down Syndrome in Chinese
click here. |
| Cultural/Ethnic
Competency and Services |
Ethnic
Medicine Information from Harborview Medical Center (Ethnomed)
The
24 Languages Project - Utah
The
Cross Cultural Health Care Program
Interpreter
Services in Washington State
University
of Washington's Culture Clues
Culture,
Health, and Literacy: A guide to Health Education Materials
for Adults with Limited English Literacy Skills
|
| Telephone
Helplines |
Tobacco
Quit Line 877-270-STOP or in Spanish, 877-2NO-FUME
Alcohol and Drug Hotline
800-562-1240
Domestic Violence Hotline
800-562-6025 ASK (Answers
for Special Kids) Hotline, from Healthy Mothers, Healthy
Babies 800-322-2588 The
National Hispanic Prenatal Helpline 800-504-7081 |
| Supporting
Professional
Organizations and Associations |
Washington
State Obstetrical Association
Midwives
of Washington (ACNM Chapter) Seattle/King
County Public Health Office
of Maternal and Infant Health, Washington State Department of
Health CDC's
National Center on Birth Defects and Developmental Disorders Washington
State Folic Acid Council Washington
State Public Health Association King
County Nurses Association Washington
State Medical Association Washington
Academy of Family Physicians ARNP's
United of Washington State March
of Dimes - WA State Chapter University
of Kansas' Genetics Education Center The
Maternal and Child Health Neighborhood National
Council on Folic Acid Office
of Newborn Screening, Washington State Department of Health National
Newborn Screening and Genetics Resource Center (NNSGRC)
|